Sunucu yanıtını kontrol edin

Yanıt başlıkları

İstek başlıkları

Ham HTML kodu

301 Moved Permanently - acdho.com

HTTP Status: 301

User-Agent: Mozilla/5.0 AppleWebKit/537.36 (KHTML, like Gecko; compatible; ClaudeBot/1.0; [email protected])

Date: Tue, 27 May 2025 19:25:22 GMT

Content-Type: text/html; charset=utf-8

Content-Length: 61

Connection: keep-alive

Location: http://acdho.blogspot.com/

Server: ip-100-74-4-157.eu-west-2.compute.internal

Vary: Accept-Encoding

X-Request-Id: 4374d1cf-78a0-473c-bde5-2010cbfcbf7d

HTTP Kodu 301 Kalıcı Olarak Taşındı

301 durum kodu, istenen kaynağın kalıcı olarak yeni bir URL'ye taşındığı anlamına gelir. Gelecekteki tüm istekler yeni adresi kullanmalıdır.

Kod 301 ne zaman kullanılır?

Bir web sitesi alan adını değiştirirken
URL yapılarını değiştirirken
SEO için yönlendirmeleri ayarlarken

Kod 301 kullanıcı için ne anlama geliyor?

Tarayıcı kullanıcıyı otomatik olarak yeni adrese yönlendirecek ve arama motorları dizinlerini güncelleyecektir.

200 OK - http://acdho.blogspot.com/

HTTP Status: 200

User-Agent: Mozilla/5.0 AppleWebKit/537.36 (KHTML, like Gecko; compatible; ClaudeBot/1.0; [email protected])

Content-Type: text/html; charset=UTF-8

Expires: Tue, 27 May 2025 19:25:22 GMT

Date: Tue, 27 May 2025 19:25:22 GMT

Cache-Control: private, max-age=0

Last-Modified: Fri, 08 Nov 2024 15:39:00 GMT

X-Content-Type-Options: nosniff

X-XSS-Protection: 1; mode=block

Server: GSE

Accept-Ranges: none

Vary: Accept-Encoding

Transfer-Encoding: chunked

HTTP Kodu 200 OK

200 durum kodu, standart bir başarılı HTTP sunucu yanıtıdır. Bu, istemcinin isteğinin (örneğin, bir tarayıcıdan) başarıyla işlendiği ve sunucunun istenen verileri ilettiği anlamına gelir.

Kod 200 ne zaman kullanılır?

Bir web sayfası yüklenirken
Bir API yanıtı başarıyla alındığında
Bir form veya başka bir HTTP isteği işlenirken

Kod 200 kullanıcı için ne anlama gelir?

Kullanıcı içeriği hatasız alır ve sayfa veya uygulama düzgün çalışır. Kod 200'e veri eşlik ediyorsa, tarayıcı veya program bunu işler ve kullanıcıya görüntüler.

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Host: acdho.com
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ACDHO - Alliance of Congenital Diaphragmatic Hernia Organizations
</h1>
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<p class='description'><span>Welcome to the official web site of the Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO), an International group of professional charity and research organizations working together to better serve babies and families affected by Congenital Diaphragmatic Hernia. </span></p>
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<h2 class='date-header'><span>Thursday, January 27, 2022</span></h2>

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<a href='http://acdho.blogspot.com/2022/01/introducing-sara.html'>Introducing SARA</a>
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<p style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBEBsQg2yO9-SfLtAsNs5u_N_W-qFhodGJG7uehUK2Jc1LkM54cIUUS0thCA9jeKwTRIEBIXf1_z_GTGahduujC21nA1nBXfRd2d3VOBBzd8ut32mCdi4DrKtIBFLr8YcVngSxYDAWwUrK/s940/Green+Summer+Camp+Illustration+Facebook+Post.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="788" data-original-width="940" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBEBsQg2yO9-SfLtAsNs5u_N_W-qFhodGJG7uehUK2Jc1LkM54cIUUS0thCA9jeKwTRIEBIXf1_z_GTGahduujC21nA1nBXfRd2d3VOBBzd8ut32mCdi4DrKtIBFLr8YcVngSxYDAWwUrK/s320/Green+Summer+Camp+Illustration+Facebook+Post.png" width="320" /></a></p><p><br /></p><p><a href="https://congenital-anomalies.blogspot.com/" target="_blank">SARA (Surgical Anomalies Research Alliance) </a>was created by the founders of the world's largest charities for the 2 most common Congenital Anomalies treated with pediatric surgical care.&nbsp; Collectively, the leaders of these organizations have over 50 years of experience in patient advocacy, research, and awareness.</p><p>CDH International was founded by Dawn Ireland in 1995.&nbsp; CDHi runs the CDH Patient Registry with over 6500 patients in 74 countries, is a registered NGO in 6 countries, has raised over $2,000,000 and actively pushes all patient communities to collaborate to conserve resources and fund more research.&nbsp;&nbsp;</p><p>CDH International is also a founding member of ACDHO.</p><p>The Global Gastroschisis Foundation was founded by Meghan Hall Rauen in 2009 after the sudden death of her 3 and a half-month-old son, Avery, from Gastroschisis.&nbsp; &nbsp;The charity was originally named "Avery's Angels" but was renamed and restructured in 2021.&nbsp; &nbsp;It is the only charity for the anomaly and serves patient families worldwide.</p><div class="separator" style="clear: both;">Both organizations happened to start in the same town in North Carolina and both by mothers who lost their sons to congenital anomalies.&nbsp; Both organizations grew to become international powerhouses in patient advocacy and support.&nbsp; &nbsp;Dawn Ireland has mentored Meghan Rauen since the beginning of The Global Gastroschisis Foundation.&nbsp;</div><div class="separator" style="clear: both;"><br /></div><div class="separator" style="clear: both;"></div><div>As both nonprofits grew and looked to help patients on a more international scale, they begin to represent these children in pediatric surgical groups, the rare disease sector and the congenital anomalies sector worldwide.&nbsp; And as the charities expanded their work, they both became very frustrated with the lack of adequate care for the patients in Lower and Middle-Income-Countries, the absence of Standards of Care and the dismissal of patient and family needs outside of the hospital.</div><div><br /></div><div>When the EU created European Reference Networks to create registries and standards within Europe, it becomes increasingly frustrating because it was not inclusive of all patients, in all countries and it duplicated registries and work being done globally.&nbsp; Patients were not represented by appropriate advocates, and lack of collaboration and the overabundance of competition and politics was detrimental to global research.</div><div><br /></div><div>The children were losing again because of the short-sightedness of adults.</div><div><br /></div><div>Meanwhile, CDH International was meeting with the World Health Organization to talk about creating a Standard of Care and Standards Measurements of Mortality and Morbidity for Congenital Diaphragmatic Hernia but saw such a great need for like Congenital Anomalies that it seemed completely natural to bring all the leaders in to help more of our children.</div><div><br /></div><div>It never set well with either charity that one person or small group in one area of the world could dictate the care of 1000's of other patients without any real experience or collaboration.&nbsp; Patients in Europe did not receive the same medical care from country to country and certainly not the same care as that given in the US or South Africa or Venezuela.&nbsp; And the patient groups in all countries should be able to work together without any power struggles, membership fees, voting constraints, inner political drama, etc.&nbsp;&nbsp;</div><div><br /></div><div>Many discussions later, CDH International and the Global Gastrochisis Foundation decided to team up to help all their patients and more by creating a truly international, collaborative, supportive, and productive alliance for Congenital Anomalies patients that did focus on one hospital, country, continent or group.&nbsp; An alliance that did not exclude patients from LMIC's and did not exclude any nonprofits from helping to save these children.</div><div><br /></div><div>At the same time, an overabundance of new nonprofits and social media groups with little to no research experience were demanding a seat at tables, overwhelming and frustrating researchers in quests to be validated.</div><div><br /></div><div>All stakeholders were frustrated and children were still dying.&nbsp;&nbsp;</div><div><br /></div><div>Communities needed a time out to really reevaluate what was important and how to achieve research and cures for patients in a much more organized, professional, and collaborative way that reflected the respect and team efforts that these children deserve.</div><div><br /></div><div><i><b>Every single one of these children deserves a chance for survival and good quality of life and it will take every single nonprofit and other stakeholder working collaboratively to make that happen.</b></i></div><div><br /></div><div>So SARA was born.&nbsp;&nbsp;</div><div><br /></div><div>The Surgical Anomalies Research Alliance includes any registered nonprofits, universities and other research facilities that work with surgically repaired congenital anomalies and who agree to uphold the standards and ethics as listed in the Charter.&nbsp;&nbsp;</div><div><br /></div><div>The name of the alliance was chosen based on the obvious work that we do but also in a nod to Sarah of many religious teachings who was a mother who spent many, many years waiting for and wanting a healthy children and was granted a miracle with a healthy son when all odds were against her.&nbsp; With these same hope, we work together for miraculous children too.</div><div><br /></div><div>The structure of SARA is simple.</div><div><br /></div><div><b>Who can join?</b></div><div><br /></div><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;">Any registered nonprofit or research center that works with patients directly through support or research projects for the following congenital anomalies and who also signs and follows the SARA Charter:</blockquote><div><ul><li>Anorectal Malformations</li><li>Cleft Palate</li><li>Congenital Diaphragmatic Hernia and Eventration (All ACDHO charities have been invited to join)</li><li>Congenital Hiatal Hernia</li><li>Esophageal Atresia</li><li>Gastroschisis</li><li>Hirschsprungs's Disease</li><li>Intestinal Atresia</li><li>Omphalocele</li><li>Spina Bifida</li><li>Tracheoesophageal Fistula</li></ul></div><div><p><b>How much does it cost?</b></p></div><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p>There will never be a membership fee to join SARA.&nbsp; All administrative work is done by volunteers, website hosting, and design donated.</p></blockquote><div><p><b>How does my organization or facility join?</b></p></div><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p>An application form will be posted shortly.&nbsp; &nbsp;Once you apply, current members will receive the application and have 10 working days to review and vote on your application.&nbsp; If your organization or facility is legally registered, is known to be ethical and collaborative in research projects and agrees to sign and follow the Charter then you will be accepted into SARA.</p></blockquote><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p><i>If you would like the application e-mailed to you, please reach out to [email protected]&nbsp;</i></p></blockquote><div><p><b>What happens after we join?</b></p></div><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p>You will gain access to our platform to work with the other members on projects.</p></blockquote><div><p><b>Can we participate in all research projects?</b></p></div><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p>Yes, in some form.&nbsp; However, many projects will have 1 representative from each patient community that is experienced in both research and direct patient care so that we do not overwhelm researchers.&nbsp; That representative will work directly with all leaders in that patient community and liason with the research projects.&nbsp; All participating organizations will be listed as co-authors in publications.</p></blockquote><p><b>What else can we do in SARA?</b></p><blockquote style="border: none; margin: 0px 0px 0px 40px; padding: 0px;"><p></p><ul><li>Work together to create a global patient registry that is owned by the patients themselves and not any one organization, government or research center</li><li>Jointly fund research grants&nbsp;</li><li>Mentor other organizations&nbsp;</li><li>Co-author white papers</li></ul><p></p></blockquote><p>The goal of SARA is to positively support ALL nonprofits who work with Surgical Anomalies and to foster a global community of support, collaborative and aggressive research to save our children. Research projects, collaborations, partnerships, and publications.</p><p><br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5LnX86cvcp_WNHottOmT3IaqSXlyOaRwCV0aP7rs3xNWU2439WbYPuNeuo_UpxzREqjGC6JxAWw3ifEQYJKpbThdw1vxfr3-RQeB_xoZFQdZVsp5JskIZEUgPHh_Q4viSj3SrP9rDK9dF/s940/Green+Summer+Camp+Illustration+Facebook+Post+%25283%2529.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="788" data-original-width="940" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5LnX86cvcp_WNHottOmT3IaqSXlyOaRwCV0aP7rs3xNWU2439WbYPuNeuo_UpxzREqjGC6JxAWw3ifEQYJKpbThdw1vxfr3-RQeB_xoZFQdZVsp5JskIZEUgPHh_Q4viSj3SrP9rDK9dF/s320/Green+Summer+Camp+Illustration+Facebook+Post+%25283%2529.png" width="320" /></a></div><br /><p><br /></p><p>The member organizations of SARA are involved with many pediatric surgery associations and projects.&nbsp; &nbsp;</p><p>When one member organization participates in a research project, they try to pull in as many other congenital anomaly representatives from SARA as possible to give all of our children the opportunity for more research.</p><p>Below are some of the many projects that our members are participating in and the patient groups that they are representing:</p><p><b>WHO Collaboration for a Standard of Care for Surgically Repaired Congenital Anomalies</b></p><ul><li>CDH International - Congenital Diaphragmatic Hernia</li><li>The Global Gastroschisis Foundation - Gastroschisis</li></ul><p><b>Global Initiative for Children's Surgery</b></p><p></p><ul><li>CDH International - Congenital Diaphragmatic Hernia</li><li>The Global Gastroschisis Foundation - Gastroschisis</li></ul><div><b>NICHD Kid's First Database:</b></div><div></div><p></p><ul><li>CDH International - Structural Anomalies</li></ul><div><b>G4 Alliance</b></div><div><ul><li>CDH International - Congenital Diaphragmatic Hernia</li></ul><div><b>Children&#8217;s Surgery Outcome Reporting programme (CSOR)</b></div><div><ul><li>CDH International - Congenital Diaphragmatic Hernia</li></ul></div><div><b>Friends of NICHD</b></div><div><ul><li>CDH International - Congenital Diaphragmatic Hernia</li></ul></div><div><div><br /></div><div><br /></div></div></div><div><br /></div><p><br /></p>
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<p>We would like to welcome quite a few new members of the Alliance of Congenital Diaphragmatic Hernia Organizations!&nbsp; &nbsp;</p><p><a href="http://acdho.blogspot.com/p/acdho-member-organizations.html">http://acdho.blogspot.com/p/acdho-member-organizations.html</a></p><p><br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/a/AVvXsEgUSQYvYEs5RCUwZ5JYKFDgu7Ip155ZJuL-t5cXQMnWGA-aMFHfX7wungswzV3Tj_9IzlJQ4x6AjZhsGmzDj3DUTvD705bisRTRbALwfE5g88VicaDVtb180s8BwjrYNRjuVdZPcAlANnnoIGsux4coXzFVBfZUjIUtMNLmC3KYvxh_GZ85F21U3SYx=s1077" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1077" data-original-width="715" height="320" src="https://blogger.googleusercontent.com/img/a/AVvXsEgUSQYvYEs5RCUwZ5JYKFDgu7Ip155ZJuL-t5cXQMnWGA-aMFHfX7wungswzV3Tj_9IzlJQ4x6AjZhsGmzDj3DUTvD705bisRTRbALwfE5g88VicaDVtb180s8BwjrYNRjuVdZPcAlANnnoIGsux4coXzFVBfZUjIUtMNLmC3KYvxh_GZ85F21U3SYx=s320" width="212" /></a></div><br /><p><br /></p>
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<h2 class='date-header'><span>Tuesday, April 30, 2019</span></h2>

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<a href='http://acdho.blogspot.com/2019/04/cdh-charter.html'>CDH Charter</a>
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The member charities of ACDHO (the Alliance of Congenital Diaphragmatic Hernia Organizations are proud to announce the creation of a<b> Charter.&nbsp;&nbsp;</b><br />
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As was announced on the 2019 CDH Telethon, 5 members of <a href="http://acdho.blogspot.com/">ACDHO</a> began creation of a charter over 2 years during the CDH Study Group Conference in Liverpool.&nbsp;&nbsp; The Charter is finally complete and public and charities are signing on.<br />
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This Charter is meant to inspire the entire Congenital Diaphragmatic Hernia Community to work together for our common goals, to be respectful of the work of others and to collaborate professionally in the fight against CDH.<br />
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ACDHO includes any licensed and legal CDH charity that meets the professional guidelines as outlines.&nbsp;&nbsp; New membership is voted on by all current members, is free and does not restrict charities in any way.&nbsp;&nbsp; ACDHO was founded over a decade ago.<br />
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ACHDO on Facebook - <a href="https://www.facebook.com/CDHorganizations/">https://www.facebook.com/CDHorganizations/</a></div>
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ACDHO Web Site - <a href="http://acdho.blogspot.com/">http://acdho.blogspot.com/</a><br />
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<h4 style="text-align: center;">
<span style="text-decoration: underline;"><b>ACDHO CHARTER</b></span></h4>
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<b>Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO)</b></div>
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An international group of nonprofit and research organizations working together to better</div>
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serve patients and families affected by Congenital Diaphragmatic Hernia.</div>
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<a href="http://acdho.blogspot.com/"><img alt="" class="aligncenter size-medium wp-image-18641" height="300" src="https://cdhi.org/wp-content/uploads/2019/04/50051878_443553356179371_1969948413155868672_n-199x300.png" width="199" /></a></div>
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<b>Code of Ethics</b></div>
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All members shall adhere to the following. Violations may result in consequences such as a</div>
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warning, suspension, expulsion from ACDHO, etc.<br />
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<div>
1. Members have a positive duty to observe the highest standards of <b>truth, accuracy, and integrity</b></div>
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with fellow members and professionals, patients, families, the media,</div>
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colleagues, other organizations, and the public.<br />
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2. Members shall treat other individuals with <b>dignity and respect</b>, avoiding extravagant</div>
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claims or unfair comparisons and giving credit for ideas and words borrowed from</div>
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others.<br />
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3. Members must not engage in any practice nor be seen to conduct themselves in any</div>
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manner detrimental to the reputation of ACDHO or the reputation and interests of the</div>
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CDH Research and Medical Nonprofit Communities. Members also shall not</div>
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intentionally <b>damage the professional reputation or practice of another member</b><br />
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4. Members shall <b>avoid conflicts of interest.</b><br />
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a. Members shall not make medical referrals to any specific doctor(s) or facilities</div>
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over or above providing patient families with information on which hospitals</div>
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provide care for CDH.</div>
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b. Members have a duty to ensure that the actual interest of any organization with</div>
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which they may be professionally concerned is adequately declared.</div>
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5. Members <b>will not disclose confidential information</b> belonging to, or obtained through</div>
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their ACDHO affiliation to any person, including relatives, friends, and business and</div>
<div>
professional associates, unless ACDHO has authorized disclosure. This policy is not</div>
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intended to prevent disclosure where disclosure is required by law. All members are</div>
<div>
cautioned to demonstrate professionalism, good judgment, and care to avoid</div>
<div>
unauthorized or inadvertent disclosures of confidential information. Upon separation of</div>
<div>
a member from ACDHO, he or she shall return all documents and other materials that</div>
<div>
may contain confidential information.<br />
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</div>
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6. Members must <b>uphold this code </b>and cooperate with fellow members in so doing by</div>
<div>
<b>enforcing decisions </b>on any matter arising from its application. A member that knowingly</div>
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causes or permits a colleague to act in a manner inconsistent with this code is complicit</div>
<div>
to such action and shall themselves be deemed to be in breach of it.<br />
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7. Members are required to take all reasonable care that professional duties are</div>
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conducted in <b>accordance with all requisite laws</b> and without causing offence on the</div>
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grounds of gender, race, religion, disability or any other form of discrimination or</div>
<div>
unacceptable reference.<br />
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8. Members shall avoid violating rules regarding <b>intellectual property rights</b> within</div>
<div>
ACDHO.</div>
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<blockquote>
<div>
a. The ACDHO seal is joint property of current members of ACDHO and can only be</div>
</blockquote>
<br />
<blockquote>
<div>
b. The CDH Awareness Ribbon is public domain and may be used by any charity or</div>
<div>
organization, or individual. Similarly, members agree that no entity will own</div>
<div>
rights to the CDH Awareness Ribbon, CDH Awareness Day (April 19th), or any</div>
<div>
other graphics, international events, etc. that should belong to all patients and</div>
<div>
entities wishing to raise CDH Awareness. </div>
</blockquote>
<blockquote>
<div>
</div>
<div>
c. All names, logos, websites, graphics, merchandise, etc. of individual charities</div>
<div>
within ACDHO are their own intellectual properties and should not be used</div>
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without prior permission from said organization. </div>
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d. Members agree to respect the artistic rights of individuals and organizations, and</div>
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agree not to infringe or compete by creating similar intellectual properties.</div>
</blockquote>
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<div style="text-align: center;">
<b>Purpose and Goals</b></div>
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<ul>
<li>Work together to support and advocate for CDH patients and their families</li>
<li>Ensure that all CDH patients are referred to an ACDHO partnered charity for support</li>
<li>Raise CDH awareness worldwide</li>
<li>Help set standards for new CDH nonprofits and mentor new charities/leaders</li>
</ul>
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<ul>
</ul>
<div style="text-align: center;">
All members must sign this charter, thereby agreeing to follow all rules stated therein. The</div>
<div style="text-align: center;">
charter may be amended at any point in time, and members will be required to sign any</div>
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updated versions.</div>
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<h2 class='date-header'><span>Saturday, March 30, 2019</span></h2>

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For more to up-to-date news on the member organizations of ACDHO, please visit https://www.facebook.com/CDHorganizations/<br />
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<i>(pictured above are the leaders of 4 CDH organizations)</i>
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<h2 class='date-header'><span>Friday, June 30, 2017</span></h2>

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<a href='http://acdho.blogspot.com/2017/06/2017-international-cdh-conference.html'>2017 International CDH Conference</a>
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Join us for the <a href="https://www.eventbrite.com/e/cherubs-2017-international-cdh-conference-tickets-34729628253" target="_blank">2017 International CDH Conference</a>, hosted by <a href="http://www.cherubs.org/" target="_blank">CHERUBS</a>.<br /><br />Register to attend the largest annual CDH event and the first conference in the midwest in several years!<br />
<br /><a href="https://www.eventbrite.com/e/cherubs-2017-international-cdh-conference-tickets-34729628253">https://www.eventbrite.com/e/cherubs-2017-international-cdh-conference-tickets-34729628253</a><br /><br /><a href="https://www.facebook.com/events/1195689943852269/">https://www.facebook.com/events/1195689943852269/</a><br /><br />Meet other CDH families, learn the latest CDH research, share your stories, build new relationships and work together to help the cause.&nbsp;&nbsp; This event is fun for the whole family, free and an excellent source of CDH support.
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<h2 class='date-header'><span>Wednesday, June 1, 2016</span></h2>

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<a href='http://acdho.blogspot.com/2016/06/join-5-cdh-charities-at-2016.html'>Join 5 CDH charities at the 2016 International CDH Conference in Pari</a>
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Join 5 CDH charities at the 2016 International CDH Conference in Paris Aug 4-8&nbsp; http://www.cdhconference.org<br />
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<a href='http://acdho.blogspot.com/2016/05/2016-international-congenital.html'>2016 International Congenital DIaphragmatic Hernia Conference</a>
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Holidy Inn Paris - Porte De Clicy <br />
August 4 - 8, 2016<br />
<a data-mce-href="http://www.hiparisclichy.com" href="http://www.hiparisclichy.com/">www.hiparisclichy.com</a><br />
<br />
Rooms are 130 Euro for 2 people.&nbsp;&nbsp; Reservations can be made by e-mailing <a data-mce-href="mailto:[email protected]" href="mailto:[email protected]" target="_blank">[email protected]</a><br />
<br />
Because
 there is such a huge need for more information and support in Europe, 
we work with other ACDHO organizations to bring resources to more 
families there by holding our conference in Europe every other year (and
 American conferences in between).<br />
<br />
Please register every member of&nbsp; your family to attend.&nbsp; Attendance is free.<br />
<br />
<b>Register at</b> <a href="https://www.eventbrite.com/e/2016-international-congenital-diaphragmatic-hernia-conference-tickets-25801962364">https://www.eventbrite.com/e/2016-international-congenital-diaphragmatic-hernia-conference-tickets-25801962364</a><br />
<br data-mce-bogus="1" />
<b>Speakers this year:</b><br />
<ul>
<li>David Kays, MD</li>
<li><a href="http://www.cherubs.org/" target="_blank">CHERUBS</a> (International) </li>
<li><a href="http://acdho.blogspot.com/2013/11/stichting-hernia-diafragmatica.html" rel="nofollow" target="_blank">Stichting Hernia Diafragmatica</a> (Netherlands)</li>
<li><a data-mce-href="http://www.apehdia.org" href="http://www.apehdia.org/"><span class="_5yl5"><span>APEDHia</span></span></a> (France) </li>
<li><a class="mrm groupsJumpTitle" href="https://www.facebook.com/groups/24598179773/" rel="nofollow" target="_blank">Hernie Diaphragmatique - groupe de soutien</a> (France)</li>
<li><a href="http://www.lavidaconherniadiafragmaticacongenita.org/" rel="nofollow" target="_blank">La vida con Hernia Diafragmática Congénita</a> (Spain)</li>
<li>More to be listed soon!</li>
</ul>
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Alan adının whois bilgisi

Domain Name: ACDHO.COM

Registry Domain ID: 2031001779_DOMAIN_COM-VRSN

Registrar WHOIS Server: whois.godaddy.com

Registrar URL: http://www.godaddy.com

Updated Date: 2025-05-26T15:36:03Z

Creation Date: 2016-05-25T17:09:27Z

Registry Expiry Date: 2026-05-25T17:09:27Z

Registrar: GoDaddy.com, LLC

Registrar IANA ID: 146

Registrar Abuse Contact Email: [email protected]

Registrar Abuse Contact Phone: 480-624-2505

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Domain Status: clientUpdateProhibited https://icann.org/epp#clientUpdateProhibited

Name Server: PDNS07.DOMAINCONTROL.COM

Name Server: PDNS08.DOMAINCONTROL.COM

DNSSEC: unsigned

URL of the ICANN Whois Inaccuracy Complaint Form: https://www.icann.org/wicf/

>>> Last update of whois database: 2025-05-27T19:25:11Z <<<

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